Holyoke’s inaugural Lupus Awareness Walk to take place on May 31

HOLYOKE — Community members, families, advocates and local organizations will come together on Sunday, May 31, at 2 p.m. for the first Holyoke Lupus Awareness Walk at the city’s Heritage State Park on 221 Appleton St.

The walk became a reality after lead organizers Lianexis Charles and Stefany Garcia, who were both diagnosed with the disease in 2014, discussed an event to raise awareness about lupus, support individuals and families affected by the disease.

They also wanted to promote education around an oft-misunderstood autoimmune illness that affects an estimated 1.5 million people in the United States.

In December 2025, Charles experienced a life-threatening lupus flare-up that she said deeply impacted both her and her loved ones. She said that through the power of prayer, her medical team, the knowledge her parents gained following her diagnosis in 2014, and the unwavering support of her fiancé, Charles regained her strength and continued moving forward.

“So, for me, this walk represents more than awareness — it is a celebration of life, resilience, faith, and the incredible support system that carried me through one of the most difficult moments of my journey,” Charles stated. “I am honored to stand alongside friends, family, and the community to help educate others and bring greater awareness to lupus.”

The walk will feature educational displays, lupus awareness materials, and personal stories from local individuals living with lupus, creating an opportunity for the community to learn, connect and show support for those impacted by the disease.

Charles explained that Lupus is an unpredictable and often silent autoimmune disease that can affect the body both externally and internally, leaving those living with it physically and emotionally vulnerable. The physical impact depends on which organs or systems are being affected, as well as the treatments required to manage the disease.

“Mentally and emotionally, lupus can be especially challenging because it is a lifelong condition that requires continuous strength, adjustment and resilience,” Charles explained. “Treatment can also involve regular infusions, depending on the severity and areas affected by lupus.”
Organizers hope the event will not only raise awareness but also help reduce stigma surrounding invisible illnesses while building stronger community understanding and support.

Charles said, “Our goal with this event is to raise greater awareness about lupus, as many individuals diagnosed with this silent and unpredictable autoimmune disease often attempt to battle it alone. The truth is that lupus is not a fight anyone should face without support, understanding and education about what the disease truly involves. We want every person affected by lupus to know that they are not alone in this journey.”

Charles also said she had the privilege of knowing Emma Hernandez, who lost her battle with Lupus. “Her story serves as a powerful reminder of why awareness, support, and community are so important. Through this walk, we hope to encourage and uplift those living with lupus so they feel supported, empowered and strong enough to continue fighting,” Charles stated.

Community members of all ages are encouraged to attend and wear purple in support of lupus awareness.

The event will also support the mission of the Lupus Foundation of America through awareness and fundraising efforts dedicated to improving quality of life, advocacy, education and research for those affected by lupus.

According to Charles, donations will help improve the quality of life for those affected by lupus, support research for better treatments, find a cure, and provide education, resources, and support for individuals and families impacted by the disease.

Readers can register to participate in the walk and/or make a donation to support the Lupus Foundation of America at www.tinyurl.com/4xadty22.